Posted in #No cure needed, ASD, Autism, Frustrated Aspie, Struggle, Thoughts

My Autism is not going to be cured so stop asking me to prove it exists!

I have been trying to sign up to an online course and it is, of course, difficult and frustrating.

I already sent my paper work in last year, and was approved and have been enrolled, but then I wanted  to transfer.  And get help from a Councillor.

You would think that being disabled, they would make it easy for me to enroll.

But no.

When I call, its the stupid automated dialing system where you need to choose options and “Press 1”.

The first time I called, it didn’t work and there was no hold music, so I hung up and tried again. Then I was finally able to get through to a human, they needed to transfer me and force me to wait 3 minutes for someone on the other end.

This new person, although polite, told me that I needed to fill out more forms to PROOVE my disability  status.

I really wanted to scream!

So to this company, and everyone else, listen up:

1. There is no cure for autism!

2. There never will be.

3. There doesn’t need to be a cure; there is NOTHING wrong with us!

4. I really do not  want to talk about my Autism, especially to some random person on the phone.

5. Stop asking me to prove that I have it EVERY SINGLE TIME I want to study!

6. Just tick the fucking box, so I can get on with my life and stop discussing my very private health issues with strangers over the phone.

I’m going to say this again: THERE IS NO CURE FOR AUTISM!

Do not believe what some crazy trouble making bitch said on her blog, she did not cure her son’s Autism. The best you can do is get an allergy test for your child, or yourself and adjust your diet.

I am so fed up and exhausted by this shit. I just wanted to learn something to help me start a small business so I can work from home and not have to go through the agony and bullshit that are modern job interviews.

That may be my next post.

(c) ASD and me 2019.

 

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Posted in ASD, Autism, Thoughts

They said yes!

The NDIS called me yesterday and said I was accepted.

I have an appointment on the 2nd of July.

They also send me paperwork to fill in and take with me to the appointment.

My head is filled with thoughts, but they are like a hurricane, so it hard to sort through them to write down and record. It sounds like a lot of bees buzzing in a hive.

I just hope they can actually help me recover. I really hate being depressed, anxious, helpless. It has robbed me of most of my life, so hopefully now I can reclaim it and he healthier and happier.

Even if not happier, just not sad would be good.

(c) ASD and me 2019.

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Posted in ASD, Autism, Books

Online book club

Its freezing cold winter here in Australia, so I’ve been staying inside with the fire place burning and reading more (when I’m not watching a scary amount of YouTube and Netflix).

I finished the first two Rosie books and am onto the third. I also found an interesting book on Amazon called “Alice” by Christina Henry.

I’ll be reading these two books, so if anyone wants to read along with me then discuss in the comments below, please feel free to do so.

(c)ASD and me 2019.

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Posted in ASD, Autism, Depression, Noise, Thoughts

Woken once again by noise

It’s 3 am and I’m awake. Again. Being kept awake and woken up by the barking muts next door. It truly unbelievable the shitty garbage I have to put up with from noisy idiots.

It’s really cold here, I’m shivering, but I can’t sleep. My fingers don’t work properly enough to type, but I still want to get my thoughts down.

My thought are a jumbled mess and its hard to type a coherent sentence, but I’m not giving up.  I’ve had enough of shitty behaviour from lower than cow shit idiots. I called the council again. I must be sleep deprived, but I thought it was a bit funny that when I call them they answer good morning, even though its 3 am. I guess it is morning but I haven’t slept yet.

I tried to call lifeline, but I chickened out. I don’t want to take someone away from a person who actually needs it. I’m not suicidal, just furious, hurt, upset, freezing, numb, confused and a bunch of other emotions, like an avalanche of emotions, sliding down a mountain and I’m caught, trapped, being dragged down with them.

I really wanted to speak to someone and confess loudly “I have ASD!” but I hung up. I still can’t bring myself to say it. It doesn’t feel like it me, I can’t have that. I don’t want it, I want to be normal and have a normal job and normal legs and hair and not be me, be someone who is normal. Even when I look in the mirror sometimes, I don’t feel like its me, I feel like I see someone else.

But I am me. Alone. Typing into a bright screen at 3 30 am.

(c)ASD and me 2019.

Posted in ASD, Autism, Thoughts

Still waiting to hear back from the NDIS

I know I only send my paperwork in one and a half weeks ago, and I know it takes about 30 days to receive a reply, but I’m anxious. I really need help and I’m hoping they say yes. This time I applied, I gave evidence from two psychologists and I’m hoping that’s enough to get government assistance.

I imagine there will be a glowing door way, with angel singing, and I’m welcomed through to a room full of Low FOD Map food made especially for me. Its the perfect temperature for me, not hot but not freezing. Its quiet, except for crickets chirping in the background.

Hopefully they will say yes. I won’t worry about what I’ll do if they say no just yet.

(c) ASD and me 2019

Posted in ASD, Autism

Waiting for help and results.

I’m only able to see my psychologist once a month and this month has been torture waiting. I have an appointment on Monday, so hopefully I can get my NDIS forms filled out, then sent and then wait another 30 days to find out if I qualify.

I really don’t know what I’m going to do if they say no.

Seems the story of my life.

(c) ASD and me 2019.

Posted in ASD, Autism, Depression, Thoughts

I think I’m in shock… or something

I’ve been very confused lately. Just wondering around, like a zombie, not eating much, not saying much. Crying a lot.

Now that its official, I don’t know how to feel or what to do. I thought having a diagnosis would make me feel better, but I feel worse. I also have no emotions. I’m just running on auto pilot and I’ve begun to hate my life. I can’t seem to find anything good to cling to. I just feel lost and am struggling with everything. I just want to lie in my bed and do nothing and sleep then wake up and be happy and normal.

The ASD test said that I wasn’t depressed, but its wrong. I think I’m beyond depression. I’ve left depression island and am now floating down “Where the fuck am I going?” river.

I need to move, I need more money, I need to have an MRI, I need lots of things. But I’m so mentally exhausted, I can’t do these things. I don’t have the energy, so I guess the rest of my life will be wasted at home, in a house I hate, in a shitty neighbourhood I can’t afford to leave and just rot to death in a private hell I can’t escape from.

(c) ASD and me 2019

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